Oodellally Golly What A Day
Isn’t it typical that two days after pouring my heart out about Elfie’s disorder she becomes ill? Will and Hux have both been afflicted with man flu this past week and after thinking Elfie and I had escaped it, she…
Isn’t it typical that two days after pouring my heart out about Elfie’s disorder she becomes ill? Will and Hux have both been afflicted with man flu this past week and after thinking Elfie and I had escaped it, she…
I’ve written before about Elfie’s health problems, but have never gone into specifics about what is wrong with her. At the time I thought I was doing it to keep a little privacy for us all. But really I…
Whenever Elfie is ill I get the overwhelming feeling of “it’s not fair”. When she had a bug as a baby it was all whinging, taking blood sugars, constantly checking temperatures and days in hospital. Thankfully now she’s older, stronger…
It’s weird, looking at Elfie now you don’t see a baby anymore. You see a toddler, a mini-person. Especially when she’s dressed in the next size up of 18 months-2 years clothes which seem seem so much more geared towards…
When Elfie is growing up I never, ever want her to consider herself different. Despite the medication and the doctor’s appointments she will always be normal. One hugely comforting thing I took from my last post about her is that it’s…
A background on Elfie’s condition can be found here and a post I wrote when she was diagnosed is here. We had some really good news from our genetic counsellor last week. The scientists in Frankfurt who have been analysing Elfie’s blood…