Oodellally Golly What A Day
Isn’t it typical that two days after pouring my heart out about Elfie’s disorder she becomes ill? Will and Hux have both been afflicted with man flu this past week and after thinking Elfie and I had escaped it, she…
Tag: cah
CAH and Elfie: What It Is, How It Affects Us and Why It’s Making Me Run
I’ve written before about Elfie’s health problems, but have never gone into specifics about what is wrong with her. At the time I thought I was doing it to keep a little privacy for us all. But really I…
Illness, Baby Cuddles and Britney.
Whenever Elfie is ill I get the overwhelming feeling of “it’s not fair”. When she had a bug as a baby it was all whinging, taking blood sugars, constantly checking temperatures and days in hospital. Thankfully now she’s older, stronger…
Elfie at 19 Months
It’s weird, looking at Elfie now you don’t see a baby anymore. You see a toddler, a mini-person. Especially when she’s dressed in the next size up of 18 months-2 years clothes which seem seem so much more geared towards…
A Hellish 24 Hours
When Elfie is growing up I never, ever want her to consider herself different. Despite the medication and the doctor’s appointments she will always be normal. One hugely comforting thing I took from my last post about her is that it’s…
Genetics and Pregnancy: What Would You Do?
A background on Elfie’s condition can be found here and a post I wrote when she was diagnosed is here. We had some really good news from our genetic counsellor last week. The scientists in Frankfurt who have been analysing Elfie’s blood…