Tag / illness


On Writer’s Block And The Frustrations Of Being Ill

I have writer’s block. But not only do I have writer’s block, I have a tummy bug. And at this point in time I really don’t know which is worse. I’ve sat down at my computer 3 or 4 times this week (before the bathroom became my best friend), written things and then deleted them […]…


Oodellally Golly What A Day

Isn’t it typical that two days after pouring my heart out about Elfie’s disorder she becomes ill? Will and Hux have both been afflicted with man flu this past week and after thinking Elfie and I had escaped it, she fell ill this morning. She woke me up crying at 6am and was lying on […]…


Illness, Baby Cuddles and Britney.

Whenever Elfie is ill I get the overwhelming feeling of “it’s not fair”. When she had a bug as a baby it was all whinging, taking blood sugars, constantly checking temperatures and days in hospital. Thankfully now she’s older, stronger and we know her condition inside-out we no longer need to do the dash to […]…

Huxley Pregnancy

The Homecoming

  We came home yesterday. Let me tell you, a whole week in hospital on a hot, noisy maternity ward with your new baby really makes you think about and appreciate the small things. Especially when neither of you are ill so the stay seems kind of futile. I  tried to view it as extra […]…


33 Weeks Pregnant

  We are now entering that strange period of time when we could realistically have a new baby here in 4-8 weeks and there is no way of predicting when it will happen. I think the to-do list of things we have left to accomplish before d-day is as long as my arm (I only […]…


Elfie at 19 Months

It’s weird, looking at Elfie now you don’t see a baby anymore. You see a toddler, a mini-person. Especially when she’s dressed in the next size up of 18 months-2 years clothes which seem seem so much more geared towards making toddlers look like children rather than babies. Thank goodness for onesies which I will […]…


A Hellish 24 Hours

When Elfie is growing up I never, ever want her to consider herself different. Despite the medication and the doctor’s appointments she will always be normal. One hugely comforting thing I took from my last post about her is that it’s not just us in a difficult situation; every family has their quirks, their intricacies, their […]…

Elfie Pregnancy

Genetics and Pregnancy: What Would You Do?

A background on Elfie’s condition can be found here and a post I wrote when she was diagnosed is here.  We had some really good news from our genetic counsellor last week. The scientists in Frankfurt who have been analysing Elfie’s blood have managed to isolate and identify the changes in Elfie’s genes which leads to her condition, […]…