Tag / cah


Oodellally Golly What A Day

Isn’t it typical that two days after pouring my heart out about Elfie’s disorder she becomes ill?
Will and Hux have both been afflicted with man flu this past week and after thinking Elfie and I had escaped it, she fell ill this morning. She woke me up crying at 6am and was lying on her bedroom floor.


Elfie at 19 Months

It’s weird, looking at Elfie now you don’t see a baby anymore. You see a toddler, a mini-person. Especially when she’s dressed in the next size up of 18 months-2 years clothes which seem seem so much more geared towards making toddlers look like children rather than babies.


A Hellish 24 Hours

When Elfie is growing up I never, ever want her to consider herself different. Despite the medication and the doctor’s appointments she will always be normal. One hugely comforting thing I took from my last post about her is that it’s not just us in a difficult situation; every family has their quirks, their intricacies, their differences.


Life with Elfie as a Poorly Baby

I‘ve been wanting to write about Elfie’s condition for a little while, to record what it’s like to live with a little one who has different needs to normal babies.
Elfie was born with a very very rare genetic condition.

Ill Elfie

Archived: Hospital Beds

I originally wrote this on 22nd October 2010, around the time Elfie was first diagnosed with her condition. It’s still hard for me to read; I feel a lot of guilt even though I logically know it wasn’t my fault she was so very poorly but the thought that we could have lost our little girl is unbearable.